Posts Tagged ‘remote caregiving’

Top Mistakes We Make With Dementia Patients

Tuesday, June 19th, 2012

As caregivers coping with the spook-house corridors of the dementia patient’s mind, we often find ourselves saying the wrong thing: “Mom, how could you have possibly forgotten your own daughter’s birthday!”

Where do comments like this come from? Frustration? The subconscious desire to will our patient back to rational thought? When we slip and say something like that, the anxiety builds and often we are left with an explosion of a reaction that can take hours to recover from. If only we could have taken a deep breath, thought it through, and said something a little different.

Teepa Snow

I recently had the opportunity to speak with Teepa Snow, MS,  an occupational therapist specializing in dementia who has both an independent practice and clinical appointments with Duke University’s School of Nursing and UNC-Chapel Hill’s School of Medicine.

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“Help, Robot! I’ve fallen and I Need You to Pick Me Up”

Wednesday, April 18th, 2012

Cutting-edge technologies for caregivers

Imagine having a robot around the house that can lift a frail elder if they fall when you are not around. Now visualize automated dresser drawers that can literally talk and guide a dementia patient through the complex—and often stressful—act of getting dressed in the morning. You are seeing what could very well be the future of caregiving.

Diane F. Mahoney, PhD, Professor of Geriatric Nursing Research at MGH Institute and her team were among the first to study wireless monitoring technologies for caregiving. Frustrated with “alert-type” bracelets (also known as PERS devices)  that patients frequently fail to activate, she became interested in high-tech devices that not only monitor patients in the home, but can provide an assist to the harried caregiver. Mahoney’s research is at the bleeding edge of caregiving technology. I spoke with her recently to find out what’s coming next.

Q: Robots in the home? What sparked this concept?

A: I got the idea when I heard that people are falling and not getting up, and they are not pushing the alert button on their alert bracelet or calling for an ambulance. I thought, wouldn’t it be nice if we had some kind of personal lifting device for elders? (more…)

How to Help When Help’s Not Wanted

Tuesday, February 7th, 2012

Or, Let’s Go to the Videotape!

How old do you have to be to be considered a “grownup”? For some people, it’s 18 or 21; for others, it’s not a precise age, but the distinction of becoming finally self sufficient, for example, having one’s own place to live and a good job. Of course, for many of us, in the eyes of our parents, the answer is: never.

Lana Maxwell is 52 and lives in Philadelphia. Her parents, Sam and Ethel, are both in their 80s, and live in New York City.

Sam and Ethel are both highly educated retired teachers, and, as far as they’re concerned, perfectly self-sufficient. Lana, on the other hand, has always been the baby of the family—someone who needed a lot of help. And, it’s true, she has had some struggles in her life, and her parents always took care of her when she was in a jam.

Old history, to Lana. But to her parents, the impression persists.

So, the problem for Lana became: how could she make the transition from being the child in the family to the responsible party—particularly when she had a history of being the needy one? (more…)

Adventures with ‘Alert’ Monitors

Tuesday, November 29th, 2011

The necklaces made famous by those “Help, I’ve fallen and I can’t get up!”  TV advertisements back in the ‘80s can seem like a brilliant idea. So simple, so inexpensive. Here, at last, is a way for Mom or Dad to maintain independence as they become frail: a button on the pendant allows you to call for emergency help 24/7.

Such devices, also known as PERS (Personal Emergency Response Systems) certainly can work fine. There’s just one catch. The fallen one has to press a button to signal for help.  Sometimes, a fall can leave a person too disoriented to remember what to do. Other times, the very idea of asking for help is so disturbing (more…)

The Distance Dilemma

Friday, September 9th, 2011

Report Affirms Stresses of Remote Caregiving—Finds Some Benefits, Too

The very idea of caring for a family member in a different zip code—much less a different time zone—has little precedent. Go back 100 years and most extended families shared a single dwelling. At the most, grandma and grandpa lived across town. Today that’s all changed. The centrifugal forces propelling family members far and wide seems only to be increasing. A 1997 study estimated that more than 7 million Americans were distance caregivers. More recently, the National Council on Aging [NCOA] projected that the number of distance caregivers would increase to 14 million by 2012.

While it is well known that caregivers in general are more prone to depression and physical illness than the rest of the population, few have looked into the particular challenges for those who do so from afar. One who has is Polly Mazanec, Ph.D., assistant professor at Case Western Reserve and an advanced practice nurse at University Hospitals Seidman Cancer Center. I spoke to Mazanec about her findings, which were published recently in Oncology Nursing Forum. (more…)

8 Tips for The Long-Distance Caregiver

Sunday, January 16th, 2011

Caregiving is never easy, but there are several steps we can take to make it less burdensome and more rewarding. I asked Marion Somers, Ph.D. (Dr. Marion), a geriatric care manager with 40 years experience under her belt, for some advice—particularly for those who care for someone who lives some distance away. Dr. Marion is the author of Elder Care Made Easier as well as a suite of free iPhone apps for caregivers.

1. Be realistic. Before you take on the role of primary caregiver, you need to determine how much time, energy, finances and emotional resources you can afford to give. (more…)

How Do You Help an Older Person Remain Independent?

Monday, September 27th, 2010

An interview with AARP’s Elinor Ginzler

As Senior Vice President of Livable Communities, Elinor Ginzler spearheads AARP’s work on housing, community services and mobility options, including older-driver issues and alternatives to driving. She is frequently called upon to confer with industry leaders about aging issues and to address groups ranging from neighborhood associations to national organizations. I interviewed Elinor by phone at her office in Washington, DC.

AARP’s Elinor Ginzler

Q: How do you define a “livable community”?

A: It’s one that has the right combination of housing options, mobility options (more…)

Grandkids to The Rescue

Monday, September 20th, 2010

It looked as if Barbara and Harry Cooper were nearing the end of the line. Still residing in Ventura County about an hour away from Los Angeles where their surviving family members lived, the aging couple were in failing health but resistant to making a change. The logical people to turn to were glaringly absent: In 2007, both their son and their daughter had died suddenly within a few months of each other.

In the end, it would fall to two of the Coopers’ grandchildren, Kim and Chinta, to take charge. These two skip-generation caregivers would have to figure everything out without a script. And, to complicate things, their grandparents insisted they were fine and didn’t need help.  (more…)

Heather Is Ready

Monday, September 13th, 2010

The most common mistake in caregiving is failing to plan. It’s so easy to put off the day of reckoning until next year, next month—even tomorrow—rather than face the music and get ready for the challenges in advance.

The opposite is true of Heather Cariou. The day of reckoning is always looming in her consciousness. She can feel its presence like a living, breathing thing. She knows that one day very soon, her family’s needs will demand her full attention, and her life will change irrevocably. Unlike most of us, Heather is prepared. (more…)

The “C” Word: For Some, It’s Difficult to Accept the Caregiving Role

Monday, August 23rd, 2010

Something was wrong. Not regular wrong. Bizarre wrong.

Lynn Goodwin describes the strange phone call she received from her mother on the day when everything started to change.

“The strangest thing just happened,” her mother said into the receiver. “I was at the refrigerator and then I was in the dining room and then I was back in the kitchen, but my hand never left the refrigerator door.” (more…)